The thought of my baby girl having down syndrome never crosses my mind. My first response was, “Babies with Down syndrome need the same things every other baby needs. It is not our right to kill our baby because he or she is less perfect in any ways. Victoria's son Dylan, now 13, has Down's Syndrome. But I rallied quickly. My husband and I feel exactly the same way you do. “Tom’s mum was just the same. Find out the type, causes, and kinds of effects it can have. 1:43 is only about a 2 percent chance, if I've done my math correctly. She asked the doctors to leave the new family alone, just the three of them. The joy she has brought into our lives knocks me off my feet. ". So you're 1:43 for Downs. In our house, the neighborhood must think the same than yours. The anti-abortion movement is using her to restrict both of our reproductive rights. Read full article. I remember lifting up his head and just looking at him, saying, ‘This is us Tom, me and you, we’ll be fine. I hate that I’m not able to defend my son and say ‘yes we did know. I think she may have DS. "My husband and I were very conscious that we weren't able to look after a baby with Down's Syndrome," says Claire, a South African investigative journalist, who was living in Scotland at the time. She tells us what it was like to find out about his condition and how her experiences compared to what she was told to expect by doctors. That if my baby is screened to have down syndrome I should abort him or her. Helen, 41, from Newcastle, is a GP and mum to three children including 13-month-old Billy who has Down's syndrome. How are you doing? But that day in Asda was the first time she’d had to deal with outright bigotry about Down’s. This makes a total of 47 chromosomes per cell (NHS 2015a). Henry is a water baby and loves the sea, swimming and pirates, Five years on. She said, “On our way home, we stopped at a sidewalk cafe. Yes it's more challenging but it's also better. It can come from either the mother or the father. Talking to other parents of children who have Down syndrome … and she knows now that her shock and upset was purely down to a lack of knowledge of the condition and assumptions from years gone by. If some of you watch the franticfraleys you will know that we have a daughter with down syndrome. “Henry has brought people into my life that have truly become some of my best friends – people who not only understand some of the difficulties we face and challenges we deal with but who ultimately, whether it’s because of shared experiences or not, have the same outlook on life as us, and for that we feel so blessed.”. “She’s honest in saying that she was totally devastated. We did the triple test thing for chromosomal disorders and it came back 1:26,000 for downs and 1:87,000 for Edwards and Pateu. Here are 12 things you may experience if your baby has Down Syndrome. My daughter has Down syndrome. This sense of hopelessness is common in mothers (and fathers) of babies with Down Syndrome. After my daughter Polly’s birth and diagnosis of Down syndrome, I appreciated friends and family asking how I was doing. Look at him. Henry having Down’s Syndrome clearly didn’t deter Ellie and Tom from having more children - and they decided not to screen for the condition in those pregnancies. It took me a while to appreciate being positive! My son has down syndrome we live in Nigeria too. We can't abort or give him or her up for adoption because we tried so hard to conceive and we'll love our baby … If doctor has confirmed 6 to 10 of these signs of down syndrome in infant, that means your baby has down syndrome. We were having very regular scans and assumed Down’s Syndrome was something that was always picked up on right? Down’s syndrome is caused by the presence of an extra chromosome in a baby’s cells. This made me cry! There is no way of predicting whether a person is more or less likely to make an egg or sperm with 24 chromosomes. ‘I’d still be proud.’” This is heartbreaking. It occurs in all races, social classes and in all countries throughout the world. In a recent article in Yahoo P arenting, another mother explains her rationale for choosing abortion after finding out she was carrying a baby with Down syndrome.. Sophie Horan was 42-years-old when she conceived naturally after two failed rounds of IVF and a failed IUI. He’s adored by his mum and dad, and is a huge source of entertainment and fun for his two younger siblings, Wilfred, 3, and Beatrix, 1. I looked down, and to my surprise it was a girl! Reply. I was offered blood work to see if our daughter had Down syndrome. Our early weeks and months were helped so much by our local parent-run group 21&Co. Even if we have to take care of the baby for life so be it. My son with severe LD's has definitely changed life for the better for our family although I suspect people looking in find that hard to believe as he is so far from society's idea of normal. “I’ve imagined him being out with his friends at discos and parties and having a girlfriend. But it was constant.”. Put it in a percentage. “Some heart anomalies were picked up at our 20-week scan so we were having regular checks to keep an eye on them,” says Ellie. “I don’t know why but I felt really in control, really strong. Five years on. Make a big deal, reminding the parents that their baby with down syndrome is a baby first of all, and babies are irresistible. WHEN an elderly man stopped to coo over her newborn baby in the supermarket, Ellie Martin was beaming with pride. The beauty of her life mesmerizes me. If doctor has confirmed 6 to 10 of these signs of down syndrome in infant, that means your baby has down syndrome. I think the thing that hurt the most was that my sister could not except that I had a daughter with Down syndrome. He’s cute now but it’s going to be bloody awful when he grows up.”. –Tell the parents how beautiful their baby is! Babies with Down syndrome may appear ‘floppy’, which normal babies may not display. I'm really scared my baby has Down's syndrome. About one baby in a thousand is born with Down's syndrome. Big fat tears of joy. News Corp is a network of leading companies in the worlds of diversified media, news, education, and information services. From Karyn, describing the relationships between her four children, including the youngest who has Down syndrome: My daughter with Down syndrome is now 5, She has siblings aged 12, 14 and 21. But if the baby has Down's syndrome, I have a disabled child and I don't know how - or if - I would manage.' Tom went home that evening, leaving Ellie alone with Henry for the first time. Once the baby is born, a blood test will help determine whether the baby has got the syndrome or noto Such children may probably have delayed language development and may also have problems with day to day activitiese. My daughter has Down syndrome and I wouldn't change a thing Whether your child receives a Down syndrome diagnosis prenatally or postnatally, it’s often surprising and sometimes difficult news. Down syndrome is not just a diagnosis. Today, Henry is just as cute as he was back on that upsetting day in the supermarket, and he’s smart, funny and loving. My family on the other hand thinks that people with down syndrome are less worthy of life and are weirdos to be looked upon. His words were: “I’m very sorry to say we think your son has Down’s Syndrome. Just an hour after his birth, Ellie recounts the doctor taking him away to do some heart checks but when he returned, he had some very different news. When I first found out my baby has Down syndrome, I was extremely sad and appreciated people saying “I’m sorry”. She writes, “Eight weeks on, we were still so blissfully happy that we hadn’t yet discussed having a CVS or amnio. “We’ve obviously taken a keen interest in the development of the new non invasive test – NIPT. It wasn’t detected by the routine test at around 12 weeks into pregnancy - though even if it had been, Ellie says she and Tom wouldn’t have terminated. And while I do not write as awesome as you, my sentiments matched with many of yours, just different since I wasn’t carrying her and she is not my own baby girl. Enter your details below for your chance to be featured on The Sun Online. I got a phone call from my doctor last week that my baby has a 1 in 85 chance of having Down Syndrome. For further details of our complaints policy and to make a complaint please click this link: thesun.co.uk/editorial-complaints/, Comments are subject to our community guidelines, which can be viewed, Tom, Henry and Ellie Martin enjoying family life, Henry's mum Ellie used to worry people were only looking to see his differences, While Henry's heart anomalies were picked up during Ellie's pregnancy, Down's Syndrome wasn't, Henry arrived five weeks early in April 2013. If a developing fetus has Down syndrome and the condition is not diagnosed during pregnancy, it’s diagnosed at the time the baby is born. For me, I have to keep it in those kinds of numbers to keep my sanity. Even if we have to take care of the baby for life so be it. “The next few days passed in an extremely emotional blur. “I, on the other hand, lay in my hospital bed all night, awake, staring at Henry, with the same sentence going through my head. But no.”, Henry arrived five weeks early in April 2013. Pregnancy And Baby Care Articles Pregnancy Signs and Symptoms. Down Syndrome Physical Issues. But the blood test I had a 18 weeks came back great. I am so scared and overwhelmed. ‘It doesn’t matter if the baby is born with Down syndrome,’ my husband said, reading my mind. “Tom stayed up all night searching on the internet for articles, blogs, advice, support. I'm from December 2012 birth club, but my baby was born at 8 months old. “His new grandparents were incredible. She is beautiful and wonderful. I rang my parents. Sophie’s husband didn’t want her to have an abortion but she was quick to try and change his mind by pointing out all the problems with children with the condition. This diagnosis uses a … I was only thirty-two years old. Six months later, Baby J. was born. Down syndrome is the most common chromosomal abnormality babies are born with. The first thing I asked when I heard her cries, was whether or not she had Down’s Syndrome. From which pushchair to buy >, to which birth centre or hospital to choose >, this is the place for you. View our online Press Pack. Here’s my list of 10 things to say to when a baby with Down syndrome is born. He had stopped feeding, still hadn’t done his first poo, had turned jaundiced and started vomiting. He’s amazing’.”, Ellie says she’s unsure where that composure came from at the very beginning. Mortified mum stumbles onto son’s homeschooling video lesson NAKED, I’m 19 & my parents track me, read my emails & control my bank account, Bloke’s 'lockdown shop' sparks controversy as trolls rage over long receipt, Mrs Hinch's husband Jamie is unrecognisable in resurfaced reality TV show clip, ©News Group Newspapers Limited in England No. Henry as the bear from We're Going on a Bear Hunt on World Book Day, Henry loves Lego and had a blast at Legoland last year, Ready for his first day of primary school, The Martin brothers, Henry and Wilfred, are best friends, One-year-old Beatrix is never far from the action with Wilfred and Henry, The Martin family are a rock-solid team, says mum Ellie, Three in a bed leave little room for mummy and daddy, Henry is a happy, healthy and fun-living little boy who has brought much joy to his family, Mum creates adorable 'carpool karaoke' video for World Down's Syndrome Day, Independent Press Standards Organisation (IPSO). Ellie’s sister’s concerns have thankfully proved baseless. Your best times are between I'd say 17 and 25. She would talk about everything else but her on the phone. Or 98 out of 100 will not. I think my baby has Down's syndrome Chat to other parents-to-be about how best to prepare for your new arrival. His words were: “, I’m very sorry to say we think your son has Down’s Syndrome. A part of her I love and cherish. The mom ... Our children who come out made by designer hands and rockin’ designer genes take us on a tour of the ... My baby has Down Syndrome, Now what? Well I can't think … “My mum was as pragmatic as ever. She came in, swept him up into her arms and had the same reaction as she did with her previous nine grandchildren. I would have explained how people with DS have very exciting futures now that the correct help and support is offered to them from such an early age. 1. You know what came back? Ellie says that as horrendous as it was at the time, Henry getting so poorly allowed the couple to get over the news of him having DS very quickly. Im going in 4 a ultrsound to make sure dates match up.? SUBSCRIBE to Barcroft TV: http://bit.ly/Oc61Hj A PAIR of twins are some of the rarest in the world due to one having Down’s Syndrome and one not. It was hard, very hard, but day by day he got stronger.”. Next thing I knew, my sweet baby was in my arms and I had so many emotions; and as soon as I looked down, I saw it. So far his impact on his siblings has been positive. Yet as he turned to walk away, he blurted out: “I don’t envy you, love. I would have explained to him that his knowledge and understanding of DS was extremely outdated and completely unjustified. “A classic response from my nephew, who was six at the time, was ‘oh yeah, I see lots of people with Down’s Syndrome on Mr Tumble.”. After all, it was perfectly fine for someone else to have a baby born with a genetic difference – but not my husband and I, not me. In most cases, for every 100 couples who have another baby, 1 will have another baby with Down syndrome. People with Down syndrome have an extra chromosome that impacts how a person looks and their ability to think, learn, and reason. Ellie, who was just seven months into motherhood, says she was already feeling defensive about her son’s condition at the time. The next day Henry’s health deteriorated. She spoke to NetDoctor about what it … I congratulated her anyways, cause she has a son now (she has 2 years old daughter already)...but I really had no idea how to say/react to this news. When Ellie Martin gave birth to her first child Henry, she wasn't anticipating a very early arrival but that wasn't all that was unexpected. So he was premature. I thought to myself… my baby has Down syndrome. Here is your answer. Today we found out that our baby has Down’s syndrome and I’m absolutely heartbroken. I can’t think of anyone on the planet suffering less than my son.”. It can happen to anyone. My younger sister has Down's Syndrome and I remember asking my Mum what I should say to a friend who had just had a baby with Down's Syndrome and she said, "Say CONGRATULATIONS on the birth of your beautiful baby, just like you would to any of your friends! However most babies with Down’s syndrome are born to women under the age of 35, as younger women have higher fertility rates. 0 Like this post Log in Add an account. To see all content on The Sun, please use the Site Map. He is not a down syndrome my dear, baby he has down syndrome that’s all. I told them we’d had some really sad news, that their tenth grandchild had Down’s. Flag optical illusion shows exactly how colour blindness works…so what do YOU see? Posted 11/09/2012. Im pregnant w/#1 & found out my baby has down syndrome. What are SMO and AFO orthotics and how do they help? I was having a baby with Down Syndrome! In this video I will be discussing the possibility that one of my twins has Down Syndrome. These tests can also be ordered when the woman has had a baby with Down Syndrome, if the obstetrician observes any changes in the ultrasound that causes it to suspect the syndrome or if the baby’s father has the chromosomal translocation involving the chromosome 21. Why I Terminated My Pregnancy After Learning My Baby Had Down Syndrome. We have not talking in 4 years. HadTo. I saw it in my baby’s face. The French novelist Antoine de Saint-Exupéry famously wrote, “It is only with the heart that one can see rightly.”This has been my experience with my daughter, Elyse. In the majority of cases, Down’s syndrome is not an inherited condition. Upon hearing the news, you may feel nervous, frustrated, hopeless. They were showing understanding and compassion for my sadness and grief. The new Gerber baby with Down syndrome is awfully cute. While the baby is still in the womb, though, the only way of knowing the possibility of him of her getting the syndrome is by tests which detect the extra chromosome. This is the time of year where we think about all of our blessings and those things that we are ... Click to share on Twitter (Opens in new window), Click to share on Facebook (Opens in new window), Click to share on Pinterest (Opens in new window). My family said, ‘Well what is it? ‘My son has Down’s Syndrome’. But it's mostly determined by age. Hey ya'll I have just made this video. fra92ynb. I used to think that I accepted people with Down syndrome. When I heard those words, Down Syndrome, referring to my own newborn son, I reached back into my memory and ... Down Syndrome- what I would have told myself in the beginning if I had only had the words. ... so I had everyone there send me pictures of the baby. First Signs of Down Syndrome During Pregnancy. That means there's extra genetic material on the 21st pair of chromosomes resulting from an anomaly in cell division during development of the egg or sperm or during fertilization. She perfect just the way God made her! If you have a down syndrome baby, welcome to the best club you never knew you wanted to be a part of. When you first learn that your baby has Down syndrome, you may feel disappointment, grief, anger, frustration, fear, and anxiety about the future. Hey everyone, welcome back to my channel. I have had two children; I was old enough, when I became pregnant, that it made sense to do the testing for Down syndrome. ", Henry was born five weeks early at Kingston Hospital in 2013, Henry's almond shaped eyes, little button nose and low-set ears were telltale signs of Down's Syndrome to the medics, Grandma Angela Spreckley's first cuddle with Henry, her tenth grandchild, Granny Pam Martin was thrilled to meet her first grandchild, Ellie and Henry don't let Down's Syndrome get in the way of having fun, Henry loves to be out and about with dad Tom. She was conceived via IVF, at our 12 and 20 week scan she was measuring fine just small although no one said. I asked over, and over, and over again until the pediatrician on call finished his examination and told me that she did not have Down’s Syndrome. He or she can help you decide whether to seek genetic counseling before you become pregnant again. Even if my baby has fatal abnormalities I will keep her or him until God decides to take my baby away. However, Ellie does wish she’d found out about her son’s Down’s Syndrome during her pregnancy. That’s really all that’s important in life, right?”. We’re a rock solid team.”. (there is a great post here that will explain), How One Couple Became Stronger After a Down Syndrome Diagnosis, Special Needs Parents; I felt sorry for them before my son was born, “I’m So Proud” A Word about our Children with Down Syndrome, Down Syndrome- What I Would Have Told Myself in the Beginning, The day I talked about my son’s Down Syndrome diagnosis without crying, October Down Syndrome Awareness Facts- Day 2, October Down Syndrome Awareness Month Facts DAY 1, Terms of Use, Privacy, Copyright, Disclaimer. We'd love to hear your stories of life with Down's Syndrome. New parents out there that has a baby with Down Syndrome remember Down Syndrome is only a medical term and it does not define your child. They rushed him to St George’s Hospital in Tooting, six miles away from where they were at Kingston Hospital. Without even being aware, our family priorities have shifted and we are so less concerned about the ultimately insignificant things in life. The older you get, the more likely you are to have a child with down syndrome. Say when you're 40, you have a fairly high chance of having a baby with down syndrome. The Sun website is regulated by the Independent Press Standards Organisation (IPSO), Our journalists strive for accuracy but on occasion we make mistakes. “Having Henry brought our lives into a whole new social network - not just the Down’s Syndrome community but a much wider special needs one. Theres a chance I am not really as far as they think & the test could be wrong but Im so scared and upset what am i in for I need support :(. It was like I never had her. Friends and family say he charms everyone he meets. 12 Hopelessness that Turns to Happiness. I'm 21, hes almost 23, were planning to start trying next year so I would be almost 23 when I have the baby. Just an hour after his birth, Ellie recounts the doctor taking him away to do some heart checks but when he returned, he had some very different news. One that says  ‘ahh that’s why’. We told all of them about her having Down syndrome when we were told, which was during my … The thought of having a baby so young was scary enough but I don’t know how we are going to deal with this. Your email address will not be published. Henry is a typical four-year-old, who loves pirates, swimming and Legoland. What I have great issue with is the lack of balanced information surrounding it. “On a weekly basis I get asked by someone ‘did you know?’. Because Down syndrome affects everyone who has it in different ways, there’s no one-size-fits-all approach to treatment. I am trying to get pregnant right now, so I am just wondeing if any of you did screening test if the baby has the genetic disorder. Guest Posted on 29-03-2013 at 5.27PM . It is very doubtful your DD has Downs Syndrome Anon, but I hope this helps and that you do seek help, as it is right to question your baby's development You are not over cautious, so don't let any one put you off Hope this helps Fran xxx. “I would have explained to him that his knowledge and understanding of DS was extremely outdated and completely unjustified. To inquire about a licence to reproduce material, visit our Syndication site. At birth, babies with Down syndrome are often the same size as other babies, but they tend to grow more slowly. He’s our son. “She sees Henry and simply laughs about the idea of feeling fearful and sad when all he is, mainly, is a big whirlwind of joy,” says Ellie. They are babies, first of all.” My statement is 100 percent true — our babies are just like any other babies, and they need the same items you would use for any other baby. I would have explained how people with DS have very exciting futures now that the correct help and support is offered to them from such an early age. So I just quite calling her. Need to know more? So 2 kids out of 100 may have Downs. ", Ellie says: “I remember looking straight down at Henry and the little telltale features that had been so apparent to the medics became obvious to me too – his beautiful almond shaped eyes, his little button nose and his low-set ears.”. A baby with Down's syndrome has an extra copy of a particular chromosome – chromosome 21 – in some or all of her cells (NHS 2015a). This extra chromosome results in small stature and low muscle tone, among other characteristics. "Surely more accurate information can only be a good thing. It is not our right to kill our baby because he or she is less perfect in any ways. Related posts: The day a stranger recognized my son’s Down Syndrome Thankful for Down Syndrome (this one has pictures and video of lots of kids) 5 lies about Down Syndrome. … As of yet we do not know what causes the presence of an extra chromosome 21. He goes to a local primary school in Kingston, where he’s learning to read alongside the rest of his peers. “The whole aspect of learning difficulties and slower development became so insignificant when our little boy was strapped up to every monitor imaginable in ICU.”. For other inquiries, Contact Us. Scared! While Ellie and Tom try to take each year at a time, they often daydream about what Henry’s future may hold. We chose to keep him’. I figured it is high time that this question got a good answer. “If I have a fear related to people noticing [my son] has Down syndrome, it is that they would assume things about the diagnosis and underestimate him,” Jill explains. After some discussion, I declined the bloodwork. Shocked! Down syndrome, to me, is part of who my daughter is. “But all that aside, we genuinely just want him to have the support he needs around him, to be happy, to have friends and to feel a sense of worth. A nurse took my hand; the doctor said: 'Nathan isn't going to die, but he's a Mongol - he has Down's syndrome.' Your baby has Down Syndrome, let me tell you, first of all, your life is not over. They said this could mean he has down's syndrome. “I’ve imagined him having a good level of independence, working at a garden centre - mainly because his dad is such an avid grower - or at a cinema, as he loves TV. If you’re planning on having more children, talk with your doctor. 'Re 40, you have an opportunity, look at their hand that if my baby girl having 's. God decides to take care of the baby is born with the syndrome will heart. My family said, “ babies with Down syndrome suppose to be.! Their tenth grandchild had Down ’ s really all that ’ s.... 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